I went in to make sure my symptoms were solely CRPS, (women commonly develop autoimmune problems with this awful disease) & treatment. My nervous system is also really broken, I can't even regulate my body temperature anymore. I know CRPS is a rare disease, but I had my hopes up for finally getting treatment, as most "specialists " around here are cash only & charge up to 100k$. I expect Drs to not know anything about this disease, it's rare, and many don't..but to completely ignore me, not even write down my CRPS dx, also in my medical records(dx by several specialists over the last 3 years), to only give me muscle relaxers and label me as fibro...I'd give anything for that dx, I'd be in less pain and wouldn't need the loads of meds from pain management. The only meds that truly help is a specific steroid that settle down firing nerves. Then just telling me no, no steroids. I get damn near suicidal during flareups..even the ERgives me a huge dose when I'm at my limit for extreme pain. /I shouldn't expect medical treatment after 3 years of being passed around..but this is the 1st time I've been completely ignored. I respect the Drs that tell me they don't know how to treat me, at least they don't waste my time & money.
Due to lack of treatment, my bloodwork is always a mess, and it has spread to full body. My stomach, heart, face/ 1head, literally everywhere. It feels like I'm on fire with broken bones...I've broken 7 teeth from subconsciously grinding them during flareups. I have a wheelchair, because if I do to much, I literally can't walk. You actually recommended exercise..I'd end up hospitalized or dead from over heating...My toes are crooked from extreme nerve damage left untreated. You know how horrible it feels to be dismissed, and that dx was really disrespectful for what I (and others) have to live with. It's called the suicide disease for a reason..Does this look like fibromyalgia to you(pics below)??? My limbs turning dark purple was the dead give away for CRPS..my foot was obliterated by an 8k lb forklift.. I've been in severe pain since the night of the accident over 3 years ago...
Sorry for the long review...but I give up. Only the wealthy have access to care...12k for ketamine...exact same treatment, different doses, for depression, 1k...Between this and bad genetics, I'll be lucky if I live to see 50 anyways...