CS
cecil stephenson
5 days ago
I would give zero stars if that were an option. In my experience, patient care at this facility has declined significantly, and my recent situation has been extremely frustrating and concerning.
My treatment began with Dr. Doulens for a work-related right knee injury. We started with conservative treatment, including physical therapy, followed by arthroscopic surgery to debride the knee. After continued issues, he referred me to the knee specialist, Dr. Sandberg. After evaluation, Dr. Sandberg diagnosed me with stage-4 osteoarthritis and confirmed that I was a candidate for a total knee replacement. However, he recommended delaying the surgery due to my age, explaining that younger patients often require additional replacements later in life and may not always be satisfied with the outcome. He suggested trying alternatives such as Synvisc (gel) injections to prolong the need for surgery.
At the time, because the injury was work-related and covered, I initially agreed to schedule the knee replacement. However, after speaking with another individual who had received similar advice from a different orthopedic provider, I decided I wanted to reconsider and pursue the more conservative options that had already been discussed.
About one week before my scheduled surgery, I was contacted and informed that Dr. Sandberg was no longer employed by IU Health and that another physician would be performing my surgery, even though I had never met this doctor or discussed my case with him. Because of this, I cancelled the surgery and scheduled an appointment with Dr. Brobst to discuss injections and an unloader brace instead.
During that visit, I explained that I wanted to try conservative treatment first. Dr. Brobst told me that I was an ideal candidate for knee replacement and that my condition had worsened but said he would submit for the brace and injections, although he doubted insurance would approve them due to cost. He also told me my work restrictions would remain the same and that his staff would complete the paperwork.
Two weeks later, I was notified that my restriction paperwork was ready for pickup. When I arrived, I discovered that all my work restrictions had been removed. The nurse could not explain why and said she only followed the doctor’s instructions. I later contacted the office for clarification and was told that Dr. Brobst had decided not to continue my restrictions, but no clear reason was provided.
This was extremely confusing, especially considering that three different physicians, including Dr. Brobst, had stated that I needed a knee replacement, yet I had not had surgery, and my condition had not improved. It felt as though once I chose to try a conservative approach instead of immediately proceeding with surgery, my care plan changed without explanation. I was also later informed that no requests had actually been submitted for the unloader brace or injections, despite being told they would be. That leaves me under the impression that I am being released back to work with absolutely no restrictions or accommodations until I give up and decide to have the surgery.
In my personal opinion, I was told one thing during my appointment, and something entirely different happened afterward. For my own protection and for my workers' compensation attorney, I record all appointments, and what occurred does not match what was discussed.
My family has been loyal to IU Health for years. I have been treated here for multiple orthopedic issues, my son has received care here for his broken leg, our family physicians are at an IU Health facility, I have an upcoming appointment at the Otolaryngology office, and my son sees several specialists at IU Riley. However, after this experience, I am seriously reconsidering whether we will continue using IU Health providers if this is the level of communication and consistency patients can expect. I'd really hate to go in for a busted eardrum just to be told that I needed to have an amputation.